AwarenessThe 'Calm Down' Podcast

All You Need To Know About Sturge Weber Syndrome ft Chelsey Peat- Episode 24

Show notes for episode 24 of the Calm Down podcast

It still baffles my mind on the different things people go through and how much resilience and fortitude it builds in them. Our guest in the Issues segment of this episode is one woman I admire so much.

What is Sturge Weber syndrome? Sturge Weber syndrome (SWS) is a neurological disorder marked by a distinctive port-wine stain on the forehead, scalp, or around the eye. This stain is a birthmark caused by an overabundance of capillaries near the surface of the skin. Blood vessels on the same side of the brain as the stain may also be affected.

In this episode, our guest, Chelsey shared how living with this affected her mental health growing up as she was constantly bullied and stigmatized. Please take a listen to educate yourself on this. Also, I’ll be linking stories of more people around the world living with this syndrome towards the end of this post.

About Chelsey Peat

Chelsey was born with a rare neurological condition called Sturge Weber in 1985. Growing up with the condition brought many challenges like extreme surgeries to living in the hospital as a young child.
She didn’t let her struggles stop her and she accomplished everything she set her mind to. From graduating, going to college, getting married and even becoming a mother. She now lives happily with her husband and two daughters in Alberta, Canada. She is an ambassador for the birthmark community and also advocates for individuals born with physical disabilities and facial differences.

sturge-weber-awareness

All you need to know about Sturge Weber syndrome Click To Tweet

The Reality Check segment was inspired by Chelsey which is a reminder not to allow your circumstance or situation define who you are or your value.

reality-check-segment-episode-24-of-calm-down-podcast

I will not allow my situation or challenges to define or devalue me. Click To Tweet

In the Common Sense Rule segment, I shared things you should never do or say to someone living with Sturge Weber syndrome.

common-sense-rule-segment-episode-24-of-calm-down-podcast

Here are three things you should never say or do to someone with Sturge Weber syndrome Click To Tweet

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Articles On Stories Of People With Sturge Weber Syndrome

Ryans Story

Beau’s Story

Social Media Platforms

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Facebook Page @Calm Down Podcast

Twitter @PodcastCalm

To get updates on new episodes and collaborations so you don’t miss out on anything, Click HERE to sign up for my podcast community newsletter. You’ll also get a story prompt once you sign up if you’d love to share your story on this podcast.

Previous Episodes You Should Listen To

What People With Albinism Go Through

This Is Why You Have A Bad Breath And Hole In Your Tooth

Be Kind To Yourself

Shalom!

 

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Viola

Hi there! I'm Ekene Viola Orjiagu. Unashamed believer, On Air Personality, Content Creator, Brand Influencer, motivational speaker and Creative Director of HiswordMybeauty.com. This blog focuses on you, i, beauty and becoming the best version of yourself through the right door himself.

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